A little about us
Hi! We're Brian, Kristen, Maddie and Bella. We're a typical family and enjoy being together and relaxing. Kristen is a full-time working wife and mom, and Brian is a stay at home dad. And he is so good at it. Bella, our oldest, is a puppy dog that protects her little sister Madelyn, cuddles and loves playing with her ball. And then there is our sweet Madelyn. She's the sunshine of the family. She's our lovely toddler who is unique and wonderfully created with 2 genetic mutations. However, she is so much more than her diagnosis and is strong, fierce, funny, and sweet. She loves being around other people! We're all living this crazy special needs/medically complex journey together and hoping to create the best for Madelyn and our family.
A little about this pageWe created this page for many reasons. We hope this page serves to raise awareness of CDKL5 and the story of rare and all that comes along with it. We also hope that the page will help educate others and help others understand Madelyn and others like her about how she may interact with the world differently. Finally, this journey can be very isolating and we hope to connect with others who might need support and empathy along the way.
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